#duchennemusculardystrophyUnmoderated tagAll postsTrendingHotNewPromotedPayoutsd-a-d in #hive-140084 • 6 months agoSave Our Sons and Walk For DuchenneThis week we've been lucky enough to be a part of Walk for Duchenne , an awareness (and fund) raising initiative spearheaded by *Sd-a-d in #hive-140084 • 5 months agoBlindsided… A BitCough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne musd-a-d in #hive-140084 • 5 months agoBirthday TripOutside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just ind-a-d in #hive-140084 • 8 months agoThe Invisibility from DisabilityA lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and pd-a-d in #hive-140084 • 9 months agoGood Grief - An IntroductionI've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who hasd-a-d in #hive-140084 • 7 months agoWhatever You Have To Do, Find An Excuse To WinSometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should-a-d in #hive-140084 • 8 months agoGood Grief - Learning About The Stages of GriefFollowing from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stagesd-a-d in #hive-177682 • 9 months agoAnyone Esle Got Kids Who've Needed Infusions?▶️ Watch on 3Speak Unfortunately for long term steroid users, bones can quickly bec
