d-a-d in #hive-140084 • 7 months agoBlindsided… A BitCough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne musd-a-d in #hive-140084 • 7 months agoBirthday TripOutside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just ind-a-d in #hive-140084 • 8 months agoA Stark ReminderWe've recently been going through a fairly annoying situation with my wife's work. A little under three weeks ago she had a mild panid-a-d in #hive-140084 • 8 months agoOften UnsureOne of the many problems with a muscle-wasting condition is that you can't always see the regression happening. Kind of like how your hair grows, it happend-a-d in #hive-140084 • 8 months agoI Don't Think We Can Be FriendsWhen dealing with a condition such as Duchenne muscular dystrophy, where muscles regress, it's really important that you look beyond the here and now, and pland-a-d in #hive-140084 • 8 months agoI'm Not Sure I CanI wrote a week ago about my son's upcoming camp and how I hope, despite his condition, that he enjoys it as much as I used to enjoy school camps. You can red-a-d in #hive-140084 • 8 months agoEverything Is DifferentI remember school camps as exciting events. A chance to let your hair down and escape the confines of overbearing parents and jump straight into the proverbial arms of overbearing ted-a-d in #hive-140084 • 9 months agoSave Our Sons and Walk For DuchenneThis week we've been lucky enough to be a part of Walk for Duchenne , an awareness (and fund) raising initiative spearheaded by *Sd-a-d in #hive-140084 • 9 months agoWhatever You Have To Do, Find An Excuse To WinSometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should-a-d in #hive-140084 • 10 months agoThe Invisibility from DisabilityA lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and pd-a-d in #hive-140084 • 10 months agoGood Grief - Learning About The Stages of GriefFollowing from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stagesd-a-d in #hive-140084 • 11 months agoGood Grief - An IntroductionI've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who hasd-a-d in #hive-177682 • 11 months agoAnyone Esle Got Kids Who've Needed Infusions?▶️ Watch on 3Speak Unfortunately for long term steroid users, bones can quickly bec
