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RE: I'm Not Sure I Can

in FreeCompliments9 months ago

This is such a touching post man.

There are not many people in this world who could do what you do with your son. Your love and dedication to giving him the best life possible shines through your photographs and thoughts, and is very apparent.

His joy is apparent as well during these moments. That three wheeler is super cool and it looked like he had a blast on that raft too!

I love how you think in ways to help people with this condition in the future as well, like with the exoskeleton idea. This is feasible with AI I think.

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Hey, thanks for stopping by.

The wheelchair is great. I looked into getting one after his camp last year, but they’re pretty expensive, so we borrow this from another family. It has a heap of different attachments too, which make it super versatile.

It’s touted as a beach wheelchair, however, I’m yet to get it onto an actual beach. The dunes the photos were taken in are the closet we’ve got! The rear wheels in the photos mean when you take the chair into the water, it won’t float, and remain submerged. You can get these big white inflated ones, similar to the small front tyre and if these are on, it’ll float on the water. There’s also a ski attachment, but there’s not much call for that in Australia!

I’ve read about an exoskeleton-type device that’s being developed already, but that was over a year ago now, and I’m not sure how progress is going. If there enough support in a fundraiser, I’ll reach out to them and see what’s happening. I love the idea because it could benefit not just people with DMD, but potentially many who use wheelchairs due to other conditions. Plus, who wouldn’t want to look like a crazy cool superhero!!